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7/18/2017 10:31 AM
 

Hey guys.  I've been away from the forum for quite a while.  My life has been turned upsidedown by Lyme Disease.  Around the beginning of the year my wife was diagnosed with Chronic Lyme Disease.  Since then we have been immersed in research on a mission to be better informed and search for a cure. Talking to other people in my community it seems that everyone has been touched by Lyme Disease in some way and the doctors in this area haven't a clue what they are dealing with.  Just a couple weeks ago my 3 year old daughter had a tick bite followed by the classic bulls eye rash indicating acute Lyme infection, she is now on antibiotics. 

Its very frustrating to be dismissed by a doctor who is going by outdated CDC information.  We had to find a Lyme Specialist to actually treat my wife's Lyme Disease and she is finally getting better...slowly.

This forum is full of people who live a lot in the outdoors.  Just wondering how many here have been touched by Lyme Disease or a co-infection.

We'd love to move out of PA and into a state where Lyme is not endemic like it is here.  You cannot go into the woods around here and not get a tick on you.  Where do we go?


"The time has come to stand for all we believe in..." Hillsong United
 
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7/18/2017 11:27 AM
 

I don't have much experience with Lyme, and it doesn't seem terribly common in TN, though we have tons of ticks. My brother is an entomologist in Florida has said before Lyme disease is basically nonexistent where he is, but still plenty of ticks. Of course where he is there's tons of skeeters spreading Zika, West Nile, and a whole host of other lovely diseases... I don't recall ticks being a problem in the Nevada deserts, but it's been a few years...

Best of luck dealing with Lyme. A doc I used to work with loved using hyberbaric oxygen therapy to help with Lyme recovery, but I lost contact with him several years ago. Still might be something to look into if you haven't.

- J

 
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7/18/2017 11:39 AM
 
Thanks. I have never heard of hyperbaric oxygen therapy. I'll check it out.

"The time has come to stand for all we believe in..." Hillsong United
 
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7/18/2017 12:00 PM
 

I live in Virginia and we are filthy with ticks.  Several years ago I got bit and was diagnosed with a pre-Lyme infection.  It was on the verge of going full-on.  A course of big-gun antibiotics took care of it, thankfully.  Ever since, I have religiously bathed every day with Dr. Bronner's Peppermint Soap.  It actually does help.  When I go into the woods, I also use plenty of high-DEET content bug juice and also use Permethrin-treated clothing on a regular basis.  I haven't had a tick bite in a long time now, and it seems that they don't even climb onto me anymore.  Chiggers, however, are another story.  If I don't use gaiters in chigger territory, they bite the crap out of me.  I still have scars on my legs from a trip to North Texas brushcountry a few months back. Sorry to hear about your wife...I hope she gets better, and also sorry about your daughter...that is a tough thing for a kid to deal with.


Hill People Gear Coureurs des Bois (Brand Ambassador). Victoria faveat paratam. De Oppresso Liber.
 
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7/18/2017 2:22 PM
 

Glad to hear you are doing well.  Thanks for the tip on the peppermint soap.  I highly recommend BugBeWear clothing that is specially treated with Permethrin.


"The time has come to stand for all we believe in..." Hillsong United
 
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7/18/2017 3:02 PM
 

We have been researching Lyme and co-infections for around 7 months. Here are a few things we learned.

1. If you get a tick bite, go get on antibiotics. Do not wait for a bulls eye rash, only about 40% of people get the rash. Do not wait for symptoms, its harder to cure the longer you have it. Its better to be on antibiotics for a while then to live with Lyme. Do not wait for testing, the ELISA test is only 50% accurate. You'd just as well off flipping a coin. There are no 100% reliable tests for Lyme, despite what the CDC tells you.
2. A tick can transmit Lyme or other co-infections to you in under an hour. Some estimate it can take as little as 10 minutes. The CDC is incorrect in stating it takes 24 to 48 hours for transmission. The tick that gave my daughter Lyme was on her for a max of 5 hours.
3. If you get a tick bite, I highly recommend you seek out a Lyme Specialist that has had Lyme Disease. They are the only ones that understand what its like to have Lyme and how to treat it. Other doctors have no idea what they are dealing with and will not be compassionate. This is a sad state of affairs.
4. Ticks fall from trees. Wear a hat treated with Permethrin when under tree growth.
5. If you catch Lyme early it is curable, if it goes chronic then you are in for a long rough road.
6. Pennsylvania is the #1 state for Lyme Disease cases. Great.
7. Stephen H. Buhner is most likely the most knowledgeable person on Lyme Disease and co-infections and treatment.

I'm sure I've got more.  Here is an interview of Bob Giguere of Igenex with some great information.

https://youtu.be/tqr2gTCnqvY


"The time has come to stand for all we believe in..." Hillsong United
 
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7/19/2017 9:17 AM
 
I'm looking at a job in Page, AZ. Anyone know how the ticks and Lyme Disease in general is around there?

"The time has come to stand for all we believe in..." Hillsong United
 
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7/19/2017 1:43 PM
 
The map on page (4) provides a bit of enlightenment concerning all sorts of tick-borne diseases:
https://www.cdc.gov/lyme/resources/tickbornediseases.pdf
 
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7/19/2017 5:29 PM
 

I understand there are ticks and chiggers in SE AZ, perhaps in the mountains... but I have lived here 11 years (30 mi NE of Phoenix - rural) and have not seen any of either. I travel to SE AZ several times a summer, no ticks, no chiggers. We get a couple mosquitoes some years, but only a couple. That's it! Summer weather is brutal, the rest of the year is great! Page should be better in that regard. Hope things work out for you! Paul

 
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7/20/2017 10:31 AM
 

In general, west of Colorado, the tick problems become considerably less, at least compared to the East Coast, especially the North East.  I was born and rasied in the NE and tick checks were the standard when walking around in the woods or high grasses/brush.  Was bit a few times, but never amounted to anything. 

Moved out to WA for some years and loved it.  Totally forgot about ticks.  When I moved back, it seemd as if the tick population had doubled.  I have found ticks on my car, in the middle of a paved driveway or on our truck loading docks at work (all concrete with the treeline over 100' away)....

Since January, I have been bit twice.  Once by the Lone Star Tick and once by a Deer Tick.  The Lone Star bite quickly disappeared (like in my youth).  The Deer Tick bite does not look good.  Waiting for tests results. 

Besides everything that has been mentioned for prevention (permithirin is awesome), I repeativly hammer into my kids head, "Tick Check" every 5-10 minutes AND check your buddy (brothers).  Those littel suckers are almost impossible to feel on your back and hair or waistline....

 

 

 
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7/20/2017 4:19 PM
 

It might sound paranoid but I don't even go out in the woods here in the North East this time of year.

Iam just too scared of contracting Lymes Disease.

It seems like everyone I know has a friend or family member that has dealt or is currently dealing with Lymes.

And as has already been stated, most MDs have no idea on how to treat Lymes effectively.

Harriman State Park  where I do quite a bit of my training hikes is one of the hot beds for Lymes.

 
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7/20/2017 6:55 PM
 

I can think of no good reason for ticks to be on this earth.  Hellspawn....them and mosquitos.  One thing I do know...if you find an Opossum on your property, don't run him off.  They eat ticks...up to 5000 a week.


Hill People Gear Coureurs des Bois (Brand Ambassador). Victoria faveat paratam. De Oppresso Liber.
 
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7/21/2017 12:57 PM
 
I hate ticks. MO was thick with them. They're nowhere near as prevalent in this part of WY from what I've seen.

If I get a bit I'll have an itchy knot on me for 3 weeks then it will quit itching (or I'll get used to it) and it hangs around for 2 or 3 months until it finally goes away. I developed the habit of long shirt sleeves, pants, permethrin and DEET every time I went into the woods. Even in that nasty high humidity MO summer.

My nephew got bit and developed a red meat allergy. That one would really suck.
 
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7/21/2017 1:55 PM
 
wilas101 wrote:
I hate ticks. MO was thick with them. They're nowhere near as prevalent in this part of WY from what I've seen.

If I get a bit I'll have an itchy knot on me for 3 weeks then it will quit itching (or I'll get used to it) and it hangs around for 2 or 3 months until it finally goes away. I developed the habit of long shirt sleeves, pants, permethrin and DEET every time I went into the woods. Even in that nasty high humidity MO summer.

My nephew got bit and developed a red meat allergy. That one would really suck.
 
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I've been reading about that lately.  Cases are increasing in NC and everywhere else.  Most were bit by the Lone Star Tick.  Being allergic to red meat is a horrible fate....
 

 

 
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